Posts filed under 'Just Life'
As with most things, I’ve been meaning to write about this for a while. I really like, as a general proposition, small gestures that can make a big difference in the long run. In that vein, my sister just signed my two youngest nieces up for UPromise accounts and the whole thing seems very cool to me. UPromise lets you save money for college for your relatives or even yourself by allocating a small percentage of purchases made with registered credit or debit cards, using certain grocery or retail store loyalty cards, eating at participating restaurants or shopping online at a vast number of websites.
Since I do a fair amount of shopping and eating, I’m already stocking away a little bit here and there. A couple of my favorite restaurants in town will earn me from 4%-8% on my bill. My Kroger rewards card earns me cash when I buy certain items. And when I shop on line, as I am wont to do, I get a little bit of cash into my account. It’s not like I’m saving tons at this point, but my sister and other family members are also doing this for my nieces. It adds up and by the time the girls are college age — they’re 6 and 9 now — I suspect whatever we’ve socked away will be useful.
Even cooler, you can link the money to 529 savings accounts — which let you save dough for your kids for college — and put it in there with the click of a button. I’ve sent links to my friends with small kids encouraging them to start UPromise accounts and invite their friends and families to participate. As my sister said, her kids have enough crap, so it would be really helpful if, on their birthdays, the money that my family spends on gifts went into their UPromise and/or 529 accounts.
When my sister gets 529 accounts set up for my nieces, I can even make a small, automatic monthly contribution that could add up over time. College is stupid expensive these days, so I can’t imagine how much it will cost even for a basic in-state education when my nieces go. (And, yes, if they wind up dropping out and going into food service, you can withdraw the money that wasn’t spent on college.)
February 14th, 2008
As you probably know by now, Barack Obama triumphed over Hillary Clinton in the ever-important Virginia primary. A couple of days before the primary, my sister-in-law Julie Carey — a veteran reporter for DC-area NBC affiliate Channel Four — sat down for a one-on-one interview with Obama. You can watch the interview, in two parts, on the NBC4.com website. Sadly, the camera never pans to Julie, but the most important part remains: I’m one degree of separation from Obama now.
And lest I get accused of currying favor, I’ve also been meaning to provide a link to this story, which ran last week on NPR’s Day to Day. It’s an interview with legendary political activist Robin Morgan, whose 1970 essay “Goodbye to All That” became a famous text in the drive to end politics as usual in this country, particularly where gender issues were concerned. Morgan has since penned a follow-up essay, entitled “Goodbye to All That (#2),” which calls for another look at the double-standard that exists in this campaign between the way women politicians are covered in the media, compared to their male counterparts.
One of the most jarring incidents Morgan points to in the NPR piece is the heckling of Hillary Clinton last night during a speech in the beltway. The senator was disrupted by a man who called out, “Iron my shirt!” As Morgan points out, the incident was covered and repeated — often with amusement — in the media in the days that follow. However, Morgan posits that there would have been a vastly different reaction had it been Obama on stage and a heckler cried out, “Shine my shoes!” It’s a simple illustration of a really salient point — that we, as a nation, will tolerate gender discrimination when a similar inicidence of racial discrimination would have caused riots.
As evolved as we like to think we are, Morgan’s new essay — which has been widely circulated via email — is an important one for our times. It’s uncomfortable — and perhaps especially so for women — to be reminded of and to acknowledge how far we haven’t come in the area of gender and politics. You don’t have to be a fan of Hillary Clinton’s to appreciate what Morgan’s essay has to say — merely a proponent of equality along gender lines.
February 13th, 2008
Well, we got our three inches. (That’s what she said!) It’s frankly more than a tad disappointing, given yesterday’s commotion about winter storms, but apparently it’s enough to cancel schools. Which seems a bit ridiculous to me. This is Michigan, people. If we can’t get our children to school because of three inches of snow, what hope is there?
Astute observers will note that I am penning this entry at what is a ridiculously early hour for me. I woke around six this morning with that strange combo where your body is completely exhausted but your brain won’t let you fall back to sleep. I think it’s part of the Effexor withdrawal, which I haven’t written about since my disastrous attempt to come off it a couple of weeks ago. I’ll provide a quick update at the risk of boring 99% of my readers in the hope that it might prove useful to that 1% who is having a similar experience.
As I noted, coming off even the smallest available dosage — 37.5 mg capsules — was a nightmare I’d prefer not to repeat. So I decided to step down even more slowly, which meant actually opening up the capsules, counting the granules of medication and manually cutting them in half. (For the record, there are an average of 126 grains of Effexor in each capsule.) I’ve been on that lower dose for over a week and it’s been much, much easier. It’s not symptom free — there are the occasional “zaps” and some other stuff — but it’s not terrible.
Today I’m stepping down again to 1/4 of the 37.5 mg capsules and we’ll see how that goes. I suspect, as I’ve read, that the real symptoms kick in when you drop off entirely, but I’m hoping if I do this for a week and then stop, things won’t be nearly as bad as before. I’ll keep you posted. I know it’s riveting.
On the flip side, I think I’m experiencing some pain relief from the new drug I’m on for fibromyalgia, neuronton. (Or, more accurately, the generic version, gabapentin.) It’s just hard to tell sometimes if it’s real relief or if I’m just in a place in the pain cycle where I feel better. I also have been doing a little research on neurontin withdrawal, in case this doesn’t work, and that doesn’t seem like a pleasant experience either. That scares me a little. But what should I do? Just live with the pain? Blech. Sometimes I just wish someone would fix me.
February 1st, 2008
Okay, the sky is not falling. But you might be forgiven for thinking so given the mad crowds I just tackled at Trader Joe’s. Here I thought dropping into TJ’s mid-morning on a Thursday would be a breeze, but little did I know that there’s a winter storm on the way. In the old days, I think that sent people to the grocery store to stock up on bread and milk, but in this town, it sends them to Trader Joe’s to stock up on organic pomegranate juice and bags of white cheddar Pirate’s Booty.
Am I the only one who looks forward to the inches of snow we’re expecting — maybe four tonight and the same again tomorrow? Apparently so. I may also be one of the few who don’t actually have to leave their houses during the day and I could see how tackling it could certainly be maddening. Still, I love me some winter storm action. Yeah, yeah. Ask me again after five years in Michigan, but for now, I’ll lay in the firewood and enjoy.
Maybe I’ll even find time to catch up on the things I haven’t posted about here. I’ve been meaning to upload a handful of pics from our trip to St. Louis, nearly two weeks ago now. Plus there’s a handful of projects I’ve been working on and snapping photos of my FO’s (that’s craft speak for Finished Objects). And I haven’t even commented on what’s going on in Britney’s life! So much to catch up on. But not now. Now I’m heading out the door to the gym. You know, to stock up on muscle mass before the snow starts.
January 31st, 2008
I’m writing this blog entry on a plane from St. Louis to Detroit. By the time you read this, I’ll have copied and pasted it online, but right now it’s nearly 11 pm. We’re running late on our return flight home after a short but, as these definitions go, long weekend in St. Louis. I’m finding myself feeling a little anxious as the plane bumps along the clouds and it occurred to me that there’s comfort to be found in writing about it.
I’ve actually been thinking a lot about fear, lately, since that’s really what my “anxiety” is. There was a time when I was so terrified of the idea of flying that I simply didn’t do it – probably from the time I was 15 or so until I was 26. Since returning to the friendly skies nearly 11 years ago now, I’ve had an interesting journey – if you’ll pardon the travel pun – when it comes to my fear. Generally speaking, it has ebbed as I have traveled more and more, as I have become used to both the notion and practice of air travel.
Also playing a significant role has been my evolving spirituality, if you will. For me that’s less about feeling a connection to a single higher deity than it is about developing a sense of my place in the world, my connection to the things around me, my acceptance of not being in control of everything and, frankly, my dwindling need to be in control of everything. Whether or not I believe in God is both boring and, really, neither here nor there.
Suffice it to say that a lot of experiences I’ve had in the past decade or so have helped me arrive at my own version of faith. After all, even in the direst of circumstances, I can’t deny that I have always been okay, that my needs have always been met – whether or not I realized it at the time. Or whether or not I agreed with that assessment at the time. It doesn’t mean that things haven’t been awful or difficult or scary or any of those negative things – just that I have always, always been okay despite all of that.
Over the years, as I quietly built my little “spirituality” sandcastle over in the corner, I’ve heard it said many times that fear is the absence of faith. There are times I agree with this statement and times when I’m not sure, but I think there’s truth in it, and that’s what has me thinking tonight, as my stomach does little hurdles when the plane bounces even a tad. Does my fear mean I don’t know that I’m going to be okay? Is that, in essence, what fear is? And why am I sometimes perfectly fine when flying and, at other times, prone to anxiety that feeds off itself and builds until I’m clutching Chris’ arm and making him tell me again and again that we are okay.
That last sentence would seem to suggest that, yes, fear must be the opposite of knowing that I’m going to be okay, since that’s what I’m asking Chris to tell me. (And by tell me, I really mean that he should be able to guarantee this which, as a man who is both wise and well-versed in air travel statistics, he feels pretty confident doing.) So why am I able to feel sometimes that I’ll be okay and other times that I’m not? Why does the very act of sitting here, laptop propped open and tapping away at the keys seem to help mitigate the effect of the turbulent air that’s shimmying the plane ever-so-slightly from side to side as we go through some cloud cover?
I know that it has something to do with how I feel physically. I’ve learned that if I’m tired (which I am) or if I’ve had too much caffeine (which I have), I’m prone to feelings of disquietude and jitteriness. And that those things suggest to me that I’m not okay and then that recognition turns on itself and I seem to hover on this very tenuous line between this side, on which our heroine will be okay and behave like a grown up, and this side, on which our heroine will give over entirely to the very physical sensations of fear and devolve into a blubbering, inconsolable mass certain of doom until the moment the wheels touch the tarmac at the other end.
In these circumstances, my fear presents itself to me like a temptation. Or maybe even like a fact, gnawing at me from the inside, aching for recognition, waving its arms and knowing that if I will just give it the nod, it can and will, in seconds, take over my entire being. As embarrassing as it is to admit this, my inner mantra in these situations very much relies on trying to keep fear at bay. “I will not give into fear,” I tell myself, over and over again, interspersed with, “I’m okay right now.” Believe me, I’m as embarrassed to admit that as you are for me in reading it. But while I’m at it, I might as well note that it doesn’t always work very well, largely because I consider myself a pretty unreliable narrator. I hear these things in my head, in my own voice, and some other part of me thinks, “That’s rich, coming from you. You’re a wreck!”
I’ve tried very hard to dissect my fear of flying – or, more accurately, my sometimes-fear-of-bouncing-a-lot-while-flying because it seems to me that it’s something that should improve consistently on an upward trajectory. The more I fly, the more I land safely, the less fear should even be an option for me in these circumstances. I should know better. Would that it were so easy. When fear takes over, what I know has little bearing on the panic party taking place in my brain. I’m not absent faith – just faith that I’ll be okay. I seem to have a lot of faith that I won’t. What’s that about? It’s all so, so hard to say. All I know is that now we’re much closer to Detroit and even if that means it’s been a long, long blog entry for you, my gentle reader, it’s been immensely soothing for me.
January 21st, 2008
Those of you in the greater St. Louis metropolitan area will be thrilled — thrilled, I say — to hear that I’m returning to my old stomping grounds this weekend for another episode/installment/theater of the absurd performance of Free Candy, St. Louis’ #1 live, non-broadcast, local interest talk show. Yes, Tom Weber just couldn’t take the heat trying to fill my shoes and has skedaddled off to Minnesota. He said something about a job with Minnesota Public Radio but, I mean, I think we all know the real story.
Even more exciting, while we’ll be at ol’ reliable Hartford Coffee Company on Sunday night, we’re starting at a new time of 6 pm, so all of you who belly-ache about being out past 8 pm on a school night won’t have an excuse not to attend. In addition, Amanda and I are thrilled to be sharing a bill of sorts with the fine folks who churn out 52nd City, truly a labor of literary love, which is one of the finest city lit mags I’ve seen. We’ll be celebrating the release of their latest issue, themed and titled “Stupid,” from 5 pm to 6 pm. There’ll be some deals and fun in the mix, and I strongly urge you to come out, have some good, clean fun and support both us and them!
Oh, as for Free Candy, we’re still firming up our guests — as we are wont to do until the 11th hour — but we do know that one of them will be guest favorite Debbie Baldwin from the Ladue News, who’s fun personified. Hope to see you there!
January 17th, 2008
First, wow. While I seem to have a solid number of blog readers, they’re not usually particularly active when it comes to commenting. So I was very moved to read the few but meaningful responses to yesterday’s post, especially those from strangers who must have stumbled upon this blog while trolling the ‘net in response to the NYT article I mentioned.
I thought it was worth noting that the second half of today’s episode of The Diane Rehm Show on NPR was dedicated to the topic of fibromyalgia. (Thanks, by the way, to the many friends who tipped me off!) I was intitially frustrated by the broadcast, which kicked off with New York Times reporter Alex Berenson making more broad generalizations about both fibromyalgia and doctors’ opinions about it. (Berenson, for the record, seems to cover the business of drugs for the New York Times. He does not appear to be a healthcare reporter and seems to have written a grand total of one article about fibromyalgia. Which brings up another pet peeve of mine, this positioning of journalists as instant experts on any given topic. But I digress.) However, I thought the broadcast generally went uphill from there and I found the comments of the doctors featured to be, for the most part, heartening. In case you missed it, you can listen to it on the DR Show’s website here.
And as reluctant as I am to report on my own failures (on which, I assure you, I am an expert), I decided after some debate to post here that I was simply unable to continue my withdrawal from Effexor XR. By last night, I had been withdrawing for nearly three days and I could not handle it anymore. As someone who lives with chronic pain, I can take a lot. But I have never in my life experienced anything as uncomfortable and disconcerting as this withdrawal. I would, I can tell you without exaggeration, have walked through my withdrawal from alcohol or cigarettes again before going on another minute.
By midnight, I was sobbing uncontrollably in bed, my skin crawling, my brain “zapping” every time my eyes moved from side to side. But, worst of all, I was seized with what I can only describe as an unshakeable sense of doom, to the extent that I was convinced I wouldn’t live until morning if I went to sleep. Poor Chris was thrown for a loop, probably a bit terrified in his own right, wondering what had happened to his wife. After he did some research, we concluded that the best thing for me would be to take some Effexor and to take another stab at this withdrawal, far more slowly, when I return from St. Louis next week.
I’m not writing about this to garner pity. I’m writing about it because I am a reasonably sane person who has withdrawn from a thing or two in her lifetime — and I had wondered if the horror stories I read about Effexor withdrawal on bulletin boards could possibly have been true. I’m not exaggerating when I say that what I experienced yesterday was one of the most difficult experiences of my life. And I think it’s important to say so. I think it’s important to talk about these things, to keep giving a voice to these things. Because if we don’t, then I think what happens is the very thing I railed against in yesterday’s post — no one believes us.
January 15th, 2008
I’ll be honest. I’ve been having a really difficult couple of days. I’m in the process of switching medications for fibromyalgia and coming off Effexor is proving to be every bit as brutal as all the web sites say. I’m unspeakably emotional, weeping at the drop of a hat. I feel dizzy and confused a lot of the time. And I get these random jolts, like electricity shooting through my body, especially, today, when I move my eyes quickly from side to side. So I suppose you could say I just wasn’t in the right mindset to come across today’s New York Times article by reporter Alex Berenson, entitled “Drug Approved: Is Disease Real?”
As soon as I read the headline, I knew the article was about fibromyalgia.
A little history, if you’ll allow me… Eleven years ago, I was rear-ended for the second time in two years. Instead of improving over time, the pain that resulted from the accident spread and worsened over a period of months. I felt, for days at a stretch as though I’d worked out really hard — that same kind of achy muscle fatigue. Initially, the pain was mostly in my neck, shoulders and back, but it soon gravitated to my arms and my legs. It cycled in and out, so that sometimes the burning in the backs of my legs was so great walking up a flight of stairs was a tremendous challenge, or raising my arms to put away dishes left me in tears.
In addition, a whole host of other odd symptoms emerged — I was constantly exhausted, but had terrible insomnia; I was introduced to the joys of irritable bowel synrome, the specifics of which I will spare you; I had great difficulty concentrating and my memory was tremendously affected, to the point that I’d wonder if I had some sort of early-onset Alzheimer’s. I’d start a sentence and simply couldn’t find the words to finish it. I’d start to do a task and, midway, forget what I was doing. My ability to recall basic facts ebbed and flowed and it affected my work tremendously. I was working at a marketing firm at the time and not only did sitting at a desk leave my upper back, neck and shoulders throbbing but whatever was happening with my mind was eating away at my performance. I was making a host of mistakes, forgetting to check things or complete tasks entirely. It was awful. I was afraid all the time of messing up, getting caught and losing my job.
I was fortunate enough, at the time, to be seeing a really terrific holistic physician. Lord knows why I chose her, but I’d gotten sober just a few months before and was on something of a health kick. At first, she thought perhaps what I was experiencing might be part of early recovery, as my body and brain tried to repair the damaging effects of alcohol dependence. But things got worse, rather than better and, after some concern that I was displaying signs of lupus or MS, my doctor finally concluded that my symptoms matched a diagnosis she had only recently heard about: something called fibromyalgia. She put me on Effexor, a now-very-popular drug used primarily for depression, which she told me was said to be effective in the treatment of fibromyalgia. She was, in her way, very ahead of the curve.
I was so grateful to finally have a name for what I was experiencing and I began to research fibromyalgia. There wasn’t much information out there and what little there was highlighted the controversy surrounding it: some doctors felt it wasn’t a real condition, that it was largely in the minds of sufferers who, for the most part, tended to be women in middle age. Protests from the medical community also surrounded the labeling of fibromyalgia as a disease, since there’s no laboratory test to confirm the diagnosis. I wasn’t overly concerned about whether or not it was truly a disease, versus a condition or a syndrome. What was far more disturbing to me was the idea that it was merely an “imaginary” condition mostly in the minds of silly, middle-aged women.
Over the next five or six years, I saw a number of different doctors — from primary care physicians to pain management specialists to chiropractors — with varying degrees of “belief” about the existence and/or the nature of fibromyalgia. Some were skeptical, but the worst of the lot was a cocky pain management doctor in Indianapolis who told me fibromyalgia was a “junk diagnosis” and then diagnosed me with it anyway. (Which I only discovered after leaving his office in tears and sneaking a look at the diagnostics form before handing it to the nurse at the front desk.) I’ve been told over and over again that I have it and, occasionally, that I don’t. And the truth is, I don’t really care if what I have is called fibromyalgia or not. I’m not interested in the label; I don’t care what it’s called.
But I do know that whatever it is I have, it’s very real, despite the occasions I’ve spent in doctors’ offices, reduced to tears by the suggestion that it’s all “in my head.” And perhaps I could have sunk further into depression and self-doubt, questioning my own sanity (which I did anyway, at times), did I not have a husband who witnessed my very-real symptoms as well as my active attempts to do whatever it takes to make them go away and, barring that, manage them as well as possible.
Again, I don’t care what the medical community calls this. I don’t care if it’s a disease or a disorder or a syndrome. What I do care about passionately is the mindset of the doctors in The New York Times article: that this is just in the minds of the patients and that naming it and offering treatment merely encourages patients to think they have something. One of the doctors quoted even suggests that fibromyalgia patients just don’t seem able (willing?) to cope with pain that the rest of the world just deals with by pulling up their bootstraps. It’s an insulting, insensitive, dismissive and deeply disheartening comment. And it smacks of the same medical institutional sexism that dismissed menopause as “hysteria” for centuries. As a patient, I can tell you that there is nothing worse than being in tremendous, life-altering pain and being told, often with a hint of disdain, that it is all in your head.
I’ve admitted that I’m prone to bouts of tears with little provocation right now. But to this morning’s article set me off again. I’m not trying to play the martyr, but I’ve suffered a great deal at the hands of fibromyalgia (or whatever the hell you want to call this group of difficult, unpleasant symptoms) for over a decade now — and perhaps the biggest disservice I’ve done to others with this condition (and myself) is my pride-driven ability to hide it from those around me. (Ask nearly anyone who knows me — only a select few know how much pain and exhaustion I’m usually coping with.)
I’m willing to field accusations of being reactionary but I also think the article is sloppy journalism. I think it takes a very limited and superficial “is it or isn’t it?” glance at fibromyalgia, inspired, apparently by the FDA’s recent approval of Lyrica as a drug for fibromyalgia — without talking to patients or even providing a full, clear scope of the symptoms afflicting fibromyalgia patients. I understand the article’s assertion that drug companies have a very real and lucrative motive for wanting to promote fibromyalgia as “real.” But that doesn’t actually mean it isn’t. It doesn’t mean that the suffering of all these people is imaginary.
I actually went to my doctor last month to talk to her about Lyrica. She wasn’t gung-ho about putting me on something relatively new to the market, with no long-term data on its effects and I appreciated her perspective. Instead, we talked about Effexor, which I’d been taking for over a decade, and how much it seemed to be helping me and if it was time to try something new. Thus, we decided that I would come off Effexor and try neurontin, a drug that has many applications, not the least of which is pain relief.
I did some research on withdrawal from Effexor and, by all accounts, it is unpleasant at best and brutal at worst. I’ve spent the past few weeks weaning off to the lowest prescribed dose and yesterday was my first day without any Effexor in my system. And it has, to be honest, been lousy. In addition to the weeping jags, I feel constantly dizzy and off balance. I have what feel like small jolts of electricity going through my body, especially when I move my eyes quickly from one location to another or turn my head quickly. It is deeply, deeply unpleasant and unsettling…but it seems to be par for the course in getting off this drug, upon which my neurological system has depended for 11 years.
It’s possible that these symptoms could worsen, although I hope not. And it’s likely they’ll continue like this for a while, although whether that means three weeks or six months remains to be seen. So what’s my point in telling you all of this? Partly just because it’s what’s happening to me right now and that’s what I write about here. But also, perhaps more importantly, because I think it’s pretty obvious that a sane person wouldn’t put herself through any of this if there weren’t a very real condition for which she hopes to seek relief. No matter what you want to call that condition.
January 14th, 2008
Question: If you buy a new rug from Ikea for your office, how long before one of your cats pukes on it?
Answer: Four days.
Discuss.
January 10th, 2008
Man. I’m in a mood today. I’m trying very hard to bear in mind that it’s probably largely due to my change in fibromyalgia medications, that I am exhausted from the new one and grouchy from withdrawing from the old one. And the fact that it’s grey and rainy again, doesn’t help. But really.
I just got back from the Y where I had a pretty good workout that left me in a relatively good mood. However, trying to exit the Y parking lot, I got stuck two cars behind an older gentleman. I couldn’t see clearly from my car, but the exit gate wasn’t lifting, so obviously there was some sort of error — whether user problem or faulty system, I didn’t know. All I know is that we weren’t moving and I could see him pressing the call button for help a couple of times.
Since I was at the end of the line, I backed my car up and went inside to tell the front desk. Now, it should be noted there were four YMCA employees behind the desk at this point. I asked them if they knew that there was a man stuck at the exit. To my surprise, two of them replied that they did know. “He’s too close to the gate,” one said. “He needs to back up.” Another said, “You mean the elderly gentleman? When he calls back up here again, we can buzz him out.”
To which I responded, perhaps not patiently, that there were cars behind his and that somebody needed to go down there and help him. Which one of them did, but not without a distinct look of annoyance passing across his face.
Now. I know that I’m an uber-bitch when it comes to customer service, but this really got under my skin. They seemed to move into action only once they knew other members were stuck behind this elderly man — at which point, I tend to think I’d be driven to apologize to my clients for the inconvenience. But that’s just me. What really bothered me, though, is that the staff knew there was an elderly man at the exit, having obvious difficulty with the system, and no one considered going out there (which, yes, involves going downstairs and outside and a quarter block down) and helping him. Sure, he’s old and doddery, but he’s also apparently a paying client.
Am I being ultra-sensitive? Probably. Still, it cheeses me and cheeses me good. I just really hope that when I’m old and incompetent — or, hell, young and incompetent — someone will help me out. Is that so much to ask?
January 8th, 2008
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